Search found 18 matches

by HSowalla
Tue Sep 05, 2017 2:16 pm
Forum: Clinical Research
Topic: ClinicalTrials.gov
Replies: 0
Views: 4629

ClinicalTrials.gov

For more information on clinical trials surrounding NMO please visit: www.clinicaltrials.gov and search "Neuromyelitis Optica"
by HSowalla
Tue Sep 05, 2017 2:14 pm
Forum: Clinical Research
Topic: What is clinical research?
Replies: 0
Views: 4526

What is clinical research?

Clinical research is seeking to find better ways to prevent, diagnose, treat, and eventually cure NMO. These advances come with improved understanding of the causes and effects of the disease. Clinical trials​are designed to determine which medicines or procedures best benefit patients, and which ma...
by HSowalla
Tue Sep 05, 2017 2:07 pm
Forum: Clinical Research
Topic: CIRCLES: Biorepository
Replies: 0
Views: 4788

CIRCLES: Biorepository

If you or someone you know has been diagnosed with NMO, please help us with blood samples and/or clinical data donations to our Biorepository, or blood bank. Blood samples and clinical data are vital for NMO research. Many developments in NMO treatment come from doctors and researchers analyzing blo...
by HSowalla
Tue Sep 05, 2017 2:03 pm
Forum: Clinical Research
Topic: MedImmune: N-MOmentum study (MEDI-551)
Replies: 0
Views: 6091

MedImmune: N-MOmentum study (MEDI-551)

N-MOmentum study: MEDI-551 The N-MOmentum study is been conducted to test if the drug MEDI-551 will have proven benefits of reducing the risk of NMO or NMOSD attack. The drug is MEDi-551, this is the active drug. It will be giving 300mg intravenously twice, at Day 1 and at Day 15 and then every 6 mo...
by HSowalla
Tue Sep 05, 2017 1:58 pm
Forum: Clinical Research
Topic: Sakura Star Study – Chugai Pharmaceuticals NMO Clinical Trial
Replies: 0
Views: 4844

Sakura Star Study – Chugai Pharmaceuticals NMO Clinical Trial

Sakura Star Study – Chugai Pharmaceuticals NMO Clinical Trial One of those medicines, we call SA237, is a monoclonal antibody against an IL-6 receptor. And I will talk actually a bit more about IL-6 later. This molecule is in a clinical study we call Sakura Star study or the code of the study is SA3...
by HSowalla
Tue Sep 05, 2017 1:50 pm
Forum: Clinical Research
Topic: The PREVENT Study – Alexion Pharmaceuticals NMO Clinical Trial
Replies: 0
Views: 4629

The PREVENT Study – Alexion Pharmaceuticals NMO Clinical Trial

PREVENT stands for Prevention of Relapses and Evaluation of Eculizumab in Neuromyelitis Optica Treatment. The goal of the PREVENT trial is to study the ability of a medication called eculizumab to prevent relapses of neuromyelitis optica – NMO and NMO spectrum disorder. Eculizumab is an antibody pro...
by HSowalla
Tue Sep 05, 2017 1:38 pm
Forum: Forum: Real Attacks
Topic: What is a NMO Flare?
Replies: 2
Views: 9983

What is a NMO Flare?

Individuals with NMO develop optic neuritis, which causes pain in the eye and vision loss, and transverse myelitis, which causes weakness, numbness, and sometimes paralysis of the arms and legs, along with sensory disturbances and loss of bladder and bowel control. NMO patients can also sometimes de...
by HSowalla
Tue Sep 05, 2017 11:24 am
Forum: Forum: Share your Story
Topic: Something Wasn't Right: Heather Sowalla's Story
Replies: 0
Views: 4514

Something Wasn't Right: Heather Sowalla's Story

Something Wasn’t Right I was the perfect example of the shiny student off to bigger and better things from the small country town where I grew up. I had a very bright future ahead of me. It was my last year of high school, and I was cramming in as many courses into my workload as possible while enga...

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